tag:blogger.com,1999:blog-7159704200012808123.post8630589259079533767..comments2023-07-30T08:09:13.272-07:00Comments on InfertilityMom has Moved to JenniferSaake.com: What is CFS?JenniferSaake.blogspot.comhttp://www.blogger.com/profile/00187951307787002730noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7159704200012808123.post-57491154277902937022010-07-06T10:48:40.459-07:002010-07-06T10:48:40.459-07:00Jeanne, I agree, there is no "cure" for ...Jeanne, I agree, there is no "cure" for Endo and I've counseled people for years that hysterectomy will not always stop endo pain. My surgery was primarily for uncontrolable bleeding (10 weeks of mega flow and meds weren't making an impact) but it has helped my endo pain significantly. I continue learning my body and now realize that while I used to contribute all abdominal pain to endo, there was even more going on than I realized. Now that I have had my hysterectomy I am better able to figure out what kinds of pains are being caused by what things as I'm learning more contributing factors. I know for a fact that my doctor didn't do a great job cleaning up existing endo during my hysterectomy surgery as he said he really didn't even look for it (though I had asked him to). :(JenniferSaake.blogspot.comhttps://www.blogger.com/profile/00187951307787002730noreply@blogger.comtag:blogger.com,1999:blog-7159704200012808123.post-87078994869705862432010-07-06T10:18:28.930-07:002010-07-06T10:18:28.930-07:00Jenni,
I found this post when you left the link o...Jenni,<br /><br />I found this post when you left the link on my Facebook wall for the XMRV petition. I'm very sorry you've been through so much! <br /><br />In regard to the endometriosis, I think it is worth noting that it is <i>not</i> at all unusual for endometriosis patients to have continued pain post-hysterectomy. I attended monthly endometriosis support groups in the 3 cities I lived in from 1992-2008 (including being a support group leader on the last one from 2001-8). <br /><br />Sadly, in that time I met <i>many</i> women who have endo and had had a hysterectomy only to continue to have serious endometriosis-related problems afterwards. I'm glad that it has worked out so well for you. I just think it's crucial for people to know that this is not always the case. <br /><br />Endometriosis is, by definition, misplaced endometrial tissue (i.e. located outside of the endometrial lining of the uterus where it belongs). So, removing the uterus doesn't have any effect on the endometrial implants outside of the uterus. While removal of the uterus stops periods and that in and of itself can help some people with certain endo symptoms, I think it's important to note that there is no cure for endometriosis.<br /><br />I understand that you have other conditions that may have made it difficult to pinpoint what the cause of pain was. I know from personal experience how difficult it can be to pinpoint the cause(s) of pain when there are many overlapping conditions.<br /><br />Thank you for sharing information about XMRV. The Whittemore Peterson Institute sure is doing exciting work and I'm sure you are happy to be a part of their ground-breaking research.<br /><br />Take care,<br /><br />JeanneJeannehttp://chronichealing.com/noreply@blogger.comtag:blogger.com,1999:blog-7159704200012808123.post-28791795738160777532010-05-12T15:16:33.578-07:002010-05-12T15:16:33.578-07:00Oh, my gosh, Jenni, I had no idea you'd been s...Oh, my gosh, Jenni, I had no idea you'd been sick since childhood. Wow. I became very suddenly ill with CFS at age 37, 8 years ago. Before that I was very healthy.<br /><br />My doctor was just telling me at my last visit about another CFS patient with recurring chicken pox - she said various ID doctors keep telling her that's impossible, but my doctor tells them she knows a pox when she sees one!!<br /><br />Thanks for sharing your story.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-7159704200012808123.post-64918726899421042042010-05-12T12:50:53.036-07:002010-05-12T12:50:53.036-07:00I had always had problems with my cycle (severe pa...I had always had problems with my cycle (severe pain, anemia, nausea, vomiting etc.) and had gone to different doctors for 13 years before being diagnosed with Endometreosis. The doctor at the time (no longer allowed to practice)did a laparoscopy to remove my endo. He decided to leave my 2 small uterine fibroids as they "weren't going to grow".This was 2004. I felt somewhat better after, but issues started returning. He was only concerned about me getting pregnant, so he never looked into it again, despite my many attempts. I finally went to see my Family Doctor in February of 2009. I was extremely anemic and almost hospitalized for a blood transfusion. I was sent to another specialist that informed me that my uterus (due to the fibroids) had grown to a 16-18 week pregnancy size and the anemia was due to the hemorrhaging that I experienced every 3 weeks. I decided that it would be in my best interest to have a hysterectomy (even though I was only 32 at the time) as treatment wouldn't have been an option due to the amount and location of ALL of my fibroids. It was the best decision I could have made for myself. We had been struggling with IF for 6 years before we adopted our 2 boys (siblings). I still struggle with never getting pregnant, but I know that God's hand was in our adoption and infertility. Without going through all of that, I would never have my two wonderful boys and be able to support my IF sisters the same way. I am truly blessed.Bunnyhttps://www.blogger.com/profile/13079638591101091280noreply@blogger.com