Friday, August 12, 2011

Could You Please Lend a Hand?

For the past two years my friends have been wonderful about helping to support me in my desire to raise funds for the Whittemore Peterson Institute. I was so blessed when both last year (great pictures and a full run-down of the evening) and the year before, you all send my husband and I to I Hope You Dance.

Well, it's that time again. And so I humbly come asking if you would be willing to partner with me in sponsoring our evening once again? While it is a blessing to get together with others who are like-minded in trying to solve the crazy puzzle of neuro-immune illnesses such as autism, a-typical MS, gulf war syndrome, ME, CFS and much more, what these fund-raising efforts really mean to me is hope. Only a portion of each ticket purchase goes to the actual meal, while about 80% goes directly back to supporting the research of WPI.

Even if I couldn't attend the evening (and that could be a possibility this year, depending on a few factors I won't know for sure until right up to the date), I would still desperately want to be able to purchase the tickets to support this cause. Would you please consider helping me reach this goal? Every dollar helps! (If I cannot reach a full ticket purchase price, I promise to still donate any funds raised through this ChipIn event to the Whittemore Peterson Institute, so please know your donation will still encourage me and go to a great cause either way.) Thank you so much! :)


Findrxonline blog said...

My very first symptoms were pain in my lower back hurt and then in my wrists, which made me think I had carpal tunnel. Then my shoulders and neck started to hurt. The pain got so bad I ended up in the ER pleading for the pain to stop. I was started on Lyrica, Cymbalta, muscle relaxers and Amitriptyline for my constant insommina. If I got 3-4 hours of on and off sleep a night, it was a good night. When I was in the hospital I was lucky to sleep 1-2 hours total the whole day. Now I am on Lexapro since the Cymbalta was dropping my b/p too far and I am on Savella since the Lyrica was not helping with the pain. The pain is a little better but not by much. Some days I just don't want this pain anymore and would do almost anything to get rid of it. I had 2 children by c-section, gallbladder and gastric bypass surgery - all were relatively pain free compared to this. I have never had so much pain in my life.

Controlled Substances said...

Hi I was diagnosed 3 years ago with CFS and fibromyalgia. This was after having glandular fever. I was in a wheelchair for 6 months and unable to work for considerably longer. When I did go back to work I couldn't even remember how to get home! From not being able to walk up the stairs without clinging to a banister and one foot at a time, two days after my first session I walked upstairs unaided and normally. I still suffer from CFS and probably always will but it is managed now. My partner knows when I do too much and I slow down and recover very quickly now. I do suffer pain occasionally, but I lead a 99% normal life now. I cannot stress enough how treatments helped. I was told by the doctors that heat would help with pain relief. It did nothing at all. However a cold wet towel draped over my body made the pain reduce sufficiently for me to cope with it. I really do wish you all well and would encourage the use of alternative medicines as I feel conventional medicine does not really recognize these illnesses and we fall through the system.

Anonymous said...

Hi, I am a Lyme and I HS mom too.
I am looking for support.

My daughter has Lyme as well.

Strangely, we are from South Texas and never camp or live or play in the woods.

I have a question if u don't mind?

I wonder, do you know if the wittmore peterson institute supports "EN}EMBRYONIC" stem cell research?


Jenni / Jennifer Saake a.k.a. InfertilityMom said...

Hi Jamie,
I don't see an email address for you on your webpage, so I hope you see this here. As far as I know, WPI does not do embryonic stem cell research (this is an issue I am passionate about as well!) but I have sent off an email double checking this once again just to be sure. Thank you for asking. :)
I am sorry to hear of your daughter's struggle with Lyme. I do offer ongoing support on one of my other blogs -