Congratulations to the Whittemore Peterson Institute in Reno, Nevada for their grand opening today! I was in tears (and not so quietly, I might add!) before the welcoming announcements were half over. The beautiful building feels spa-like but the research happening at this first-of-its-kind facility is life-changing. I can't wait for the actual clinical phase to open and for patients like me to start seeing doctors. To share a clear idea of what this all means to me personally, please take a moment to read my XMRV poem.
What a joy to see Andrea, Dr. Judy, meet Facebook friend Lisa, and just be blown away by the sheer size and scope of all this building and all the plans for its use. My dear friend, Veronica, was such a blessing and delight to share this experience with. She drove me and pushed my wheelchair (except for the short "hijacking" by a friendly older gentleman who must have thought I was all on my own and "helped" me out of the elevator and half way down the hall before she could catch back up with us - LOL). It was a beautiful, emotional, exhausting, hope-filled morning. I've been in bed (now with hives) all afternoon as a result, but the energy expense was well worth the emotional boost of hope.
P.S. I'm still raising money to attend the WPI's fundraiser gala next month, in support of ongoing research. Will you help me "dance"? Details at http://infertilitymom.blogspot.com/2010/07/can-you-help.html
Saturday, August 21, 2010
Grand Opening
Labels:
awareness,
blessing,
CFIDS,
CFS,
chronic fatigue syndrome,
chronic illness,
disability,
encouragement,
HGRV,
hope,
ME/CFS,
neuroimmune,
XAND,
XMRV
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1 comment:
So glad you were able to be part of such an amazing blessing!
xoxoxo
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